On Mailing a Package: Caregiver’s World

My husband is in the last stages of Lewy Body dementia and can no longer do anything for himself. He is in hospice care and he is at home where I am his main caregiver. This is my world.

Today is the day I decided to end my stress eating and lose some extra pounds. Today is the 21st day in a row that I have faithfully studied my Spanish lessons. Today is the 182nd day since the husband had a stroke and became totally disabled. Today is the day a hospice volunteer came to sit with my husband and give me a couple hours to leave the house. That is what I want to write about.

I don’t get out much anymore. Since most of my friends were working and unavailable I decided to run errands around town. First on my list was getting a birthday package mailed out to a friend in Florida. The box already had an assortment of small treats in it but there was too much room left and Mom and I didn’t want to waste it. She felt popcorn would be the perfect filler. It so happens that Hayward, my hometown, has a Popcorn Store. That’s not so weird, is it?

I went there, wondering if it was open since it’s winter and there isn’t quite the tourist traffic we have in the summer. I was not disappointed. There were three cars parked outside and several men inside making popcorn, I guess. One of them came to me as I wandered the popcorn showroom and offered his assistance in finding something “not too sweet” for my diabetic friend. He was the owner, I believe, and there was a distinct “Santa Claus-ishness” about him. Probably the white hair and beard.

I bought a small bag of Main Street Mix for my friend, and although this is the first day of my weight loss program, I added a bag of Kettle Korn for myself (to make it worth his while to wait on me). I noticed three larger, unlabeled bags of popcorn on a table and asked what they were for. He picked one up and said, “It’s for you!” He couldn’t have known about my near addiction to popcorn, could he?

It was their premium white popcorn mixed with mushroom popcorn, which has nothing to do with real mushrooms. Mushroom popcorn is noticeably bigger than other kinds and has a beautiful pale yellow color. It’s going to be delicious. I left there feeling like God had smiled down.

My next stop before the post office was at Lynne Marie’s candy shop. Yes, my friend is diabetic but they have sugar free candy there and I know she likes it. There was room for some in the box.

Lynne Marie herself was working in the candy kitchen and came to wait on me right away. She pointed out some sugar free chocolate covered almonds that I thought would do nicely.

We started talking and I got around to telling her who I was and who I was related to. Not only had she gone to school with my brothers, but her family had bought a cabin on Round Lake from my husband and I years ago. It had been our first (and last) investment property. We felt like old friends by the time we were done with this conversation. It is the first day of my weight loss effort, but I bought a pound of her cherry nut fudge anyway. We’re friends now and it seemed like the right thing to do.

On to the post office where I finally chose a priority mail box and packed all the presents in it, surrounded by happy birthday tissue paper and a couple of cards. Mailing things always seems like such a daunting chore, but it isn’t that bad if you just make yourself do it. I felt like I had accomplished something with my time, and gotten to know my hometown shops a little better.

I love my small town. Consider this a positive review if you’re ever in Hayward looking for popcorn or fudge. Main Street Gourmet Popcorn, Lynne Marie’s Candies

I might have seen popcorn and fudge on my list of allowed foods, yeah, I’m pretty sure…

June Journal

It’s lilac time. Lest you think we overdid it,,, we shared with others.

June 1

June started on a Wednesday. Our usual morning trio was increased to a quartet since cousin Kim is up from Florida for the week. Mom has been getting up early to see the sunrise, which is now around 5:15, but it has been less than spectacular. There are too many trees and houses in the way of the horizon, and it is either too cloudy or completely clear, neither of which make a great sunrise.

I thought a lot about my daughter and her husband who left Seattle in the afternoon to fly to Bethesda, MD to investigate a cancer treatment trial. At this stage it is still an adventure for Ryan, well, except for the stress of decision making and waiting for other’s decisions to be made. The opportunities come suddenly and they had only a day to get mentally prepared for this trip. I pray that it will be productive and that they will feel well cared for.

I spent an hour in the afternoon with a young mother. She was happy to sit on the couch and talk, forget studying anything or counseling of any kind. She was without the children or their father and hardly knew what to do with a whole hour to herself. I prayed for her not only to myself, but also with her after asking her permission. I don’t think she is often in conversation with God because talking to him brought tears, good ones.

June 2

Read to the husband this morning. Besides our Bible passage, and a spiritual growth book, we read the first 7 days of “Sac Prairie Journal”. It totally inspired me to write this month. Life is 99% average stuff so a writer just cannot afford to wait until something explosive happens to write. I’ve known that but the confirmation was good. This author feels the same way I do about the woods, and I should quote him. Yes, I will.

My biking friend couldn’t keep our date to meet for a ride in the afternoon, and I was tempted not to go at all. But thank God, I went anyway and was glad I did. I went on the CAMBA trails at the hospital, and I mean ALL of the trails. It was an 8 mile ride. I didn’t go fast and furious, and I often go alone just so I won’t have to match anyone else’s pace. I stopped and took a picture along the creek. It was a lovely day and I managed all the rocks, bumps, bugs and wind in my face without having any spills or times when I had to walk up a grade.

June 3

My calendar says “Patty will clean house.” This was a birthday present from my Mom who gets her house cleaned by Patty every other week. I have a bad case of “cleaning before the cleaning” syndrome, especially since my house smells somewhere in between a nursing home and a kennel. Having someone from the outside come in and deal with my mess takes a little getting used to, but the payoff is having clean floors and a whole lot less dust. Worth it.

I biked the same trails this afternoon with Sue, but this time it was harder and I didn’t make it up a couple of the grades without stopping. I’m tired from yesterday. Sue, a physical therapist, said I just needed to learn to use my gears. I’m not sure the bike has gears that low.

June 4

Saturday, the last day of the week. I wear my loose, crazy pants to remind me not to do things that aren’t restful. Did a lot of reading today and took Mom in the golf cart to all our favorite places on the farm – Mary Pat’s spot overlooking the pond, Scruffy’s gravesite in the silo, the lilac hedge and the peony bushes and the perennial garden. We drove slow and savored it all while we talked.

Later I went back to MP’s bench and just sat, looking at the water reflections, the clouds, the sunset.

The Canadian geese families were wary of me for a few minutes but later decided I wasn’t dangerous and let their young charges march up to the wildflower field to snack. I say march because they stick together almost in formation. I am amazed at how fast they can waddle. They must eat a lot because they are getting big, fat almost. The two adults spend most of their time upright, looking around on guard duty. They seldom duck down to nibble anything. I’ve seen how fast they can get their brood back in the water at the smallest threat. They know how to do family.

On guard

It is so peaceful – I long to share the quietness of this scene with others.

“Hugh observed that nature was as necessary to some men as opium to the opium eaters… Opium eaters of a different kind. Perhaps – though it is not to say that nature is escape, because every nature lover knows that all is not soothing peace close to the earth, but rather that there is manifest always a ceaseless war, the endless struggle to survive, the marks of which are everywhere to see at all seasons. No, this kind of opium eater has about him a core of inner strength no one else ever has. Something there is that marks his kinship with the earth, something that makes itself manifest in the lingering of an eye upon a bird, the way his body takes the winds, something that rises to quicken the pulse in mid-winter at the thought alone of spring. The necessity of nature to him is stronger even than he; take him away from nature, and an essential part of him will shrivel and die… Nature is the kind of opium that quickens every sense a man has, that enriches and enlivens his appreciation of the earth on which he lives, and to which he ultimately returns as a part to its whole.”

from “Wisconsin Country, a Sac Prairie Journal” by August Derleth

This time of year the sunsets are more interesting than the sunrises, but you have to be up till 9:30 pm to see them

It’s June

It’s June, only 20 days away from the longest day of the year. The sun was still quite a way above the horizon at 7:30 pm when I took the picture above. In spite of this, last week we had a couple nights below freezing. The night it got down to 28 degrees, my new potato plants froze. They had just gotten above ground and were looking so healthy and strong. Everything else in the garden got covered with tarps and sheets and survived. It is light now at 5:15 am so maybe everything will grow fast and produce before the short summer is over.

I took several walks this week. It is scary how fast the trees went from bare to fully leafed out. It’s like they know they have to hurry. The wooded trails are SO BEAUTIFUL! My walks go slow because I am always stopping to take pictures, or identify bird calls. It all looks lovely to me and is like medicine for my soul.

Even things that are nearly spent can be lovely (and that should be comforting to those of us who are nearly spent…)
Birch trees are so unique. White trunks just aren’t the norm.
The streams and marshes are full of water, flowers, reflections.
Who could refuse a path like this?
Looking a fern in the eye is kind of amazing.
Black water reflections captivate my camera (and me).
Canadian mayflowers are even a little late here. A natural garden in the pine forest.
Such a contrast from my winter trail. And to think that all this was just waiting in the cold ground and appears in its season without any help from us.

Yesterday’s walk was past a beaver pond and a large marsh. I pushed through the bushes to get a view of the water and watched a family of ducks swimming. The cattails started rustling and moving and out of them came the largest raccoon I have ever seen. It had a grizzled white head and was prowling through the marsh, probably looking for nests with eggs. Later I saw a pretty box turtle digging a hole in the dirt for her eggs

It was a good walk. I am still counting steps – 13,000 yesterday and 10,000 today. The last two weeks I have been working on getting the garden going instead of walking, but even then it was easy to get 5,000 to 7,000 steps tilling, carrying mulch and fixing fence.

Suddenly, it is summer in this crazy, wild, northern place.

It’s a good thing it doesn’t have to be a very big hole.

All Trails Project: Henks Park Trails

This trail was not on the All Trails app, but it should be! I have learned how to suggest it be added and plan on doing that.

Millions of leaves, from millions of trees…

Another warm fall day was given to us in Wisconsin so I took another hike. In case you think time spent walking is time wasted, let me tell you it is not. Something about the rhythm of walking, and the peaceful, natural environment is perfect for creative thinking. If only I could remember all the ideas that come to me out in the woods…

If only the deer could read the signs.

Henks Park has recently appeared off a road I have traveled for years. Only about five miles south of Hayward on State Highway 27, it is well marked with nice maps available at the parking area. There are numerous loops of varying lengths. I explored today and was able to walk three miles without retracing my steps. All loops are in beautiful, deciduous woods with glacial ravines and hills. The nearest highway is out of sight but close enough to be heard – it is not a remote area and it would be hard to get lost.

There are picnic tables near each loop and a gazebo at the parking area. This kind of wooded area has deep ravines, most of which have a marsh or pond at the lowest elevation. There are hills to climb. I tried to photograph the ups and downs of the trail but the topography is hard to capture. The trail is well groomed and leaf covered in most areas – great for walking but I would not have wanted to be riding a bike up the leaf covered slopes.

I thoroughly enjoyed this bunch of trails and want to go back soon and record them for the All Trails App (unless the technology is more than I can figure out). Check out this beautiful park!

Sunday Recess

I’m glad for a day off from A to Z postings because I have a few photos to share.

My walks last week were so reviving! Spring is on the way, in spite of Friday’s snowfall. Most of that has melted.

There are robins everywhere, hopping around.

It was 59 degrees warm one day!

And this is what spring in Wisconsin looks like.

Stay well and hopeful.

Lassitude

Yep, it’s still winter….

Lassitude: A state of physical or mental weariness; lack of energy.

This is a winter word. We are half way through our fourth month of winter and I am getting weary in my mind. I’m also weary of hunting for boots, mittens, scarves and coats every time I have to go out. Actually, I don’t always put all that stuff on – that’s how weary I am of it all. I just run outside in my sweatshirt and hope to make it over to Mom’s house before I freeze.

You would find some things about our winter surprising. For instance, you can’t imagine how warm our house gets – too warm to wear anything long sleeved. On a sunny day our south windows heat the place up to 78 degrees and I have to open a few windows in order to breathe. I have one blanket on my bed and sometimes I throw that off. And inside those down jackets, it can get hot and sweaty on a walk. Yes it can.

I’m still taking walks in the wetlands every now and then. I take my phone along in case I encounter a photographic moment, but lassitude has taken over in that area too. All these winter pictures start looking the same. Kind of white.

I took a walk today. Most of it was on the track made initially by a snowmobile, followed by a couple of showshoers, followed by some boots. It’s frozen hard and is rough. I had to look down and pay attention not to twist an ankle, but at least my knees stayed dry (except for that one time coming through a deep place where I had to crawl out).

It was clear today and the snow was all sparkly and clean. Okay, I did take pictures. I have cool gloves with the finger patch that lets me do the touchscreen AND keep my hands warm. Here’s some winter whiteness, and to liven things up see if you can guess what kind of animal tracks you’re seeing. (You’re all “wilderness scout” types right?)

Something that drags a tail.

Something with long toenails.

Something with three feet and a tail? I don’t know.

Something (four footed) that meets friends on top of the hill.

Something that walks on two feet until it falls.

Day of the Jaeckel

It’s been years since I walked for a cause – the three day, 60 miles breast cancer walk. Today I joined my brother and his wife and a couple hundred other people from our small community to walk a 5k for ALS.

John Jaekel is a Haywardite, former coach and educator at the high school, and friend and neighbor to most everyone he meets. He is also one of the longest survivors of ALS and a spokesperson for the cause all around the state of Wisconsin. The walk was started by his family and other supporters around four years ago and has become a regular event in Hayward.

We met at the Lutheran Church in town where John is a member, and went inside to look at the silent auction items. There is no fee to join the walk, so the auction is the fund raising portion of the morning. There is an online auction as well as the one we saw, and many Hayward businesses and individuals were represented there. I bid on a small piece of furniture. Lumber from the lumber company, 2 months membership at the local gym, hair cuts and beauty supplies, art and specialty food items, and tickets to Packer games(!!!) as well as other creative and tempting offerings were up for bid.

The walk was leisurely, led by John Jaekel himself in his motorized chair. There were parents with small children in wagons and strollers, elderly people being pushed in wheelchairs, and all ages in between. The weather was cooperative, actually could not have been more perfect. I’m not kidding, there were cheerleaders and encouraging signs along the route.

One family walking close to me came from a city 80 miles away to join the walk. They had lost a brother to ALS the year before and knew John through the support network they had been in together. I didn’t get to talk to John but it was clear that he was a beloved member of the community and had been successful in stirring people to action. One of the signs along the route pointed out that the purpose of the walk was to make sure that someday there wouldn’t have to be any walks. Research toward a cure is the goal.

At the end of the walk, volunteers at the church had breakfast ready for all the walkers. Someone had upped the ante on my table bid, so I pushed it up a little higher. I didn’t get it but it went for a better price and that was good.

This was a day to walk and talk with others, over a common interest – that of helping people like John Jaekel and others who are battling als. I admire his enthusiasm and dedication, and wish him well. I thank him for bringing our community together around a good cause.

Dinner and a Show

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Dinner on the deck

We are still at Smith Meadow, and tonight we had our first dinner guests. The menu was my secret recipe Macaroni and Cheese with a salad, watermelon and raspberry cream cheese pie for desert. Brother Dennis and sis-in-law Mary Pat came out to join us (they brought the pie)(and it was good!). This was such a treat for Dennis because he misses out on family dinners now that he isn’t comfortable at the condos.

It’s mighty hot here, for Wisconsin anyway, and we ate outside on our deck which was cooler than in the trailer. It was early enough that the mosquitoes weren’t bad yet, the meadow was half sun and half shade, and the birds were having their final sing for the day. It was remarkably comfortable. We didn’t hurry it.

Family selfie

As we were finishing we heard a tractor approaching and, sure enough, it had a rake attached to prep the downed hay for baling. The surprise was that it was driven by a 15 year old young woman (in a dress), a Mennonite farm girl working to make hay with her dad. I didn’t get a picture of that huge rake and tractor as she ran it around the meadow – a missed opportunity for sure. We watched in awe, and clapped when she left. She acknowledged with a smile and a wave. She was one of eight children from the farm adjoining our land. My brother said he wouldn’t be surprised if she came back with the baler before it was dark.

Tractor and baler (shielded cab with AC of course…)

Sure enough, more tractor noises approached, preceded this time by an SUV driven by a mom with her four children in the back. The tractor and attached baler came next driven by the father with his one year old son on his lap. They start them young.

It didn’t take long for the family to leave the car and come sit on the deck with us. The children were such happy, farm savvy, healthy looking and enthusiastic young people that I kind of fell in love with them, quickly.

The eight year old boy saw the baler stop and immediately announced that his father had put too much hay in and had clogged the baler. He ran out and rescued the one year old while his dad crawled under the baler to fix things. He also gave his opinion on how many bales the meadow would yield and he was right. He had already been around enough hay fields to be knowledgeable.

The little guy would rather be riding the tractor with dad.

The girls sat next to me and conversed while we watched the field get processed. They were surprised when I told them many children don’t know what a farm is all about and think milk comes from a supermarket. We talked about cows, coyotes, their toy room, and how nice it was that their grandpa and grandma lived next door. Janessa, who is five, was the most talkative. She could have played Laura in Little House on the Prairie, if she had been an actress. But how much better to live the life and not have to pretend.

The baler got fixed, the field cleaned up right good with three big bales and a smaller one. The show was over. Our new friends got in their Suburban and went home. Night fell and the fireflies came out. Dinner and a show, but much more interesting and fun than the usual outing by that name… just sayin’.

Up North: Polar Vortex

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My super warm (super crazy) hat, drying out by the door.

Wanting to get my definitions down “cold”, I looked up the word vortex. It’s a whirling mass of water or air that sucks everything into it’s center.  I’m guessing that the word polar means the air is circling around the pole, North pole in this case. We’ve all seen the maps on the weather reports about the circle dipping down into regions it doesn’t usually affect. That’s what happened this last week.

I don’t want to make light of a weather event that resulted in loss of life. Those things that come unexpectedly like storms, tornadoes, tsunamis, forest fires, etc… and catch people off guard are always going to be a problem for the unprepared. But frankly, we hardly noticed the vortex here in Hayward.

It’s winter and everyone expects it to be cold. When it’s more dangerous than usual, a few things get cancelled and we stay inside a little more. The one outstanding consequence for us, particularly the husband, was that even the mail delivery was cancelled one day. Obviously, whoever made up that postal creed about “neither snow, nor rain, nor heat, nor gloom of night can keep these couriers from the swift completion of their appointed rounds” did not live in northern Wisconsin. Nope.

The polar vortex was here for about three days. On one of them we had an appointment with a nurse at the court house. She was there as usual. We got in our vehicle, which is kept in a heated garage, and drove there and kept our appointment with no difficulty.  On the way out of the building I noticed that someone had ridden their bike there and parked it in the bike rack. Personally, I wouldn’t have done that in below zero temps, but that just shows you what people do up north when they have to.

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The weather station. 74 – 32 is 42, right? I don’t know why they make us do the math.

My biggest decision these days is whether I want to be too warm when I’m in the house or too cold on my frequent, but brief, trips outside.  Almost all days I wear two layers on my legs, wool socks and shoes with a good thick sole. I do layers on the top too, but count on shedding them inside. Sweatshirts, down shirts, fleece jackets are hanging in the closet, handy, and on the backs of chairs, on the beds – wherever I happen to be when I get too hot.  Sometimes when I get an irritating flash of heat, I look at our indoor/outdoor weather station and it will be 78 degrees or higher inside.  What a problem to have…

People like the husband, who are pretty much limited to walking as their form of exercise, have it rough in this weather.  We don’t have an exercise bike or treadmill that he’s comfortable with, so I have to take him somewhere to walk. We go to the local hospital where the hallways are wide, with handrails and frequent places to sit, eat or use the rest room. We can walk for nearly a mile if we visit all the connected clinics and facilities. They are getting accustomed to seeing us at the assisted living Bistro where we often stop and have lunch. They serve the best $3 soup and sandwich in Hayward.

One of our oft-used mottos up here is “if you don’t like the weather you’re having, wait a few minutes for it to change”. This weekend it’s supposed to be 41 degrees and raining. It will probably get icy and melt some of this nice, dry snow. I’m actually hoping they’re wrong and it will stay below freezing.

I know I looked forward to our first winter back in Hayward – the afternoons reading, the evenings sitting by the fire with my knitting, the quiet snowfalls, the dazzling white, bright and sunny days. I’m trying to think of those things instead of wondering when the lilacs will bloom, or when the garden can be started. It’s best to stay “in the moment”. Just sayin’…

Mystery in the Meadow, conclusion

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The response to her brother’s note, left at the door of the fort, came two days later. It didn’t quite match any of the compelling situations she had imagined, but Shirley was okay with that.  It was a relief to know that there was no criminal in hiding, no homeless desperado, no Bigfoot out in her meadow. It was still a safe place to walk. And it turned out that the real situation was as interesting to her as the imaginary one.

It was a survival class being taught at the charter school whose property bordered the wetlands and meadow. The teacher called to remind Dennis that he had contacted him months ago about permission to use the property. He had been taking small groups of students there frequently to practice skills like finding shelter, finding food, and starting fire.  No one had noticed them out there.

The fort had been his idea. He had led the others out to the meadow to construct it. They had made fire probably four times for a simple meal, maybe six more times for keeping warm, preserving the fire bed for the next time. They were kids, but someone had to help them know that campfires were for more than roasting hot dogs and marshmallows. Shelter and fire could mean their survival. It had been a fun class.

——————————————————

It didn’t take her long to find him on Facebook and ask for a meeting. Sitting in the local coffee shop with their hot drinks, Shirley got whole story from the teacher himself.  He was clearly passionate about the outdoors, about survival in a myriad of environments, and about teaching basic skills to anyone who needed to learn them. He had stories…

Survival was a recurring theme in his life and was extremely important. He learned that at an early age growing up in Alaska.  He learned it in the military. He learned it traveling to foreign countries. There were countless experiences that reinforced that lesson.

He would present scenarios to his students. What if the plane they were on crashed in the middle of an uninhabited area and there were 50 survivors, or 100? What would be the best course of action to save lives, to survive? What would you do for the wounded? Where might you find food and shelter until help arrived? What resources might be right there in front of you but go unnoticed? He believed everyone should have a chance to think about those things. Those were the kinds of things they talked about out in the meadow, as they built the fort.

Not everyone responded warmly to the experiences he offered, at least not at first. There were the silent ones, the thinkers, the watchers. Some had been fearful and guarded all their lives. But as young people they were flexible, they learned what he was teaching and it gave them confidence, allowed them to trust and work cooperatively. It was life changing for them and rewarding for him.

“So what comes next?” she asked him as they finished their lattes and prepared to leave the shop.

“Maybe, if the fort is still there for the next class, we’ll figure out how to keep it warm. I want to see if the kids can figure out something solar, although you would be surprised how warm it gets with a dozen kids in there…”

Thanks to John (or Scott or whoever you really are) and  Angela for the latte and a great conversation. Hope to hear more of your adventures in the future.

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The meadow and surrounding wetlands.