The Last Day (of 2022)

My “second brain” planner

Most every year, during the month of December, I carry two planners around with me. One is for the present year, and one is for the year to come because I am often planning ahead. That’s what planners are for. The last day of December often finds me closing out one and looking back over the fading year. I am doing that today.

The first half of the year was filled with quiet routine. The husband was housebound except for a few rides in the car and a restaurant meal now and then. We had a regular habit of reading in the mornings and sharing thoughts on what we’d read. Evenings often included him getting a wheelchair ride around the community.

I enjoyed the seasons – skiing in the winter, gardening in the spring and, most of all, planning for our August family reunion.

While family was arriving in late July, the husband had a stroke. Before that time I often wondered how his diagnosis of Lewy Body dementia would play out. He was obviously experiencing symptom progression but so slowly. I thought he was dependent on me in some ways, but little did I realize that being able to walk at all, and being able to eat are very independent activities. He was still doing those things at will, and amusing himself during the day with tv, phone calls, and books.

The stroke took all of that away. What followed was 25 days in ICU, 5 days in a step down unit, 49 days in acute care rehab hospital, 26 days in skilled care rehab, and 24 days in a nursing home. I’ve been sitting here with my planner counting up the days and marking the events. Most of these places were 90 minutes away from home. The last was only half an hour away. I’ve put thousands of miles on the car. I was weary of traveling and welcomed bringing him home. This is his 29th day at home, the 17th day under hospice care.

I am the primary caregiver, although we do have around 15 hours of care each week from CNAs hired privately. That is the summary of the second half of 2022 for the husband and me. It’s been a year to remember.

I can’t say that I have felt like writing much during this time. Occasionally it has been an emotional release. I might also like to have record of what we have gone through, at some later date when memory fails me. But much of it I would like to forget. Ten years ago I would not have imagined living the life I have now.

Should I say something about God and his part in the road we’re on? I see him as having been very patient and understanding of my fatigue, my not want to think deeply, or pray consistently, or immerse myself in scripture every day. In some ways I am numb to those disciplines in much the same way as a young mother with a house full of toddlers. God sees what overwhelms his humans. He sends me out on a “walk and talk” and I will tell you that the natural world has been my lifeline this year.

Lots of privacy out here and a real sense of who I am praying to as I walk. No denying he has a sense of beauty.

He sits with me when I cry. He gives me words for the husband when calming and encouragement is needed. When action is called for he has given me the thought of what must be done and the energy to do it. He has given me assurance about all the confusing and uncertain things – that I can trust him and decide not to fear, not to blame.

Many friends have said they are praying for us, and have reminded me of that often. That has weight with me. This is not the first time that prayer has been important to me, but still it is a mystery how God uses it. I want to be involved in that mystery, not necessarily to understand it, but just to have a part in it. Somehow God attaches great power to prayer and I love to see him be powerful , up close and personal.

I think it was good that we asked God for healing for Dennis. Why would we not? But it is also okay that he has not been healed because perfect health is not the only blessing God can bring with a hard experience. And we have always known that we will die at some time – it’s just the end part of being human. We will not waste the experience by becoming bitter or turning away from the most exciting relationship humanity has ever been offered. No, neither Dennis nor I feel any disappointment with God, or the way he has exhibited his friendship with us.

He has been “with” us. Sometimes he has been a peaceful presence on my walks. Sometimes he has sent others to us to spend time or offer help. I’m often told that I’m not alone and have felt like saying “Well, I feel pretty alone in spite of what you say.” But now I receive that differently. God puts that sentiment on the lips of others to remind me that he is with me, even when people are not. That’s enough. He is not named “Immanuel” for no reason.

Thoughts in the Night

So many thoughts come when I’m awake at night, usually waiting for a headache to resolve, praying because I cannot sleep. Those times are not necessarily bad, even very sweet once in a while.

People come to my mind, one after the other, and I realize how rich my life is with a wide variety of friends. Circumstances come to mind and I realize how complex the world is. Everywhere there are situations that make people suffer and cry. Some say that God, if there is such an entity, should step in and make it different. I’ve read in the Bible that it was different once, and the people of that time chose to trust their own decisions instead of the wise instructions they’d been given. Turns out that has been a prevailing trend ever since.

I’m amazed that there is so much hope, beauty, encouragement left in the world and it often steps into view when we need it most. That is not an accident. It’s the plan, to lead us back to the way it was, eventually. No one but an all powerful God is going to bring about a world that we will all want to live in. It’s too far beyond any world leader or government. I am encouraged because I see evidence of his forethought and control everywhere in nature. The question becomes, how then shall I wait?

What hope do you have if you cannot imagine there is a God who could be wise enough to solve our problems, who could dissolve the anger and hate in hearts, who could comfort the inconsolable and bring justice to both sides of every equation?

It is arrogance to think that because we cannot imagine something, it cannot exist. Our search should be for a better, more faith filled imagination.

There is more beauty this fall than I remember seeing, ever. Maybe it is just because I am driving through miles and miles of it nearly every day. It puts me in awe and strengthens me for the coming months of winter.

Thoughts I Didn’t Plan on Thinking

Today we are in my brother’s truck having a rare family road trip. It’s a change for me not to be driving. It leaves me free to look out the window at the gray, somewhat foggy fall day. The leaves are turning but the colors are muted and dull. There is still a lot of green out there so maybe we’ll have a better autumn brilliance in a few more days.

We are going to Eau Claire, a small city two hours away, to visit Chippewa Valley Eye Clinic. An ophthalmologist/plastic surgeon has been working on Mom’s right eyelid after removing a small basal cell carcinoma. This is our fourth visit due to complications of the surgery and repair. Mom has been struggling with ointments, painful eyes, poor vision and a sense of being really tired of this whole process. We don’t know what to anticipate today.

We have so many medical options for anything that goes wrong with our bodies these days. And things do go wrong sooner or later – that is a given. There are many decisions to be made because of this, some we make for ourselves and some others make for us. Swirling all around these calls for decision are issues like the value of life, quality of life, the comparison of one life over another, our views of death and suffering and medical accountability. It’s deep water and not fun to navigate.

This week I was sitting in my husband’s hospital room as he slept. In the common room where I could see and hear them, a family was sitting with their youngish looking son who had obviously been in an accident of some kind resulting in brain trauma. Like my husband, he was there for intense rehab and he was showing good improvement. I had a moment of guilt as I compared him to my elderly husband, with numerous comorbidities, struggling to show progress at all who was taking up a valuable bed in the facility. I felt sorry for the doctor who had to decide to move my husband out to a nursing home for rehab, and I understood what she had to consider. Because we’re having trouble finding another suitable place, he is still here at Miller Dwan in that bed.

My husband spends time thinking about what purpose God could have for him that he was allowed to survive this stroke. He is so tired, and to look at him on some days, you might think he was half dead already. I think he looks half dead, which makes me get busy waking him up, shaving the stubble, sitting him up and telling him to open his eyes before the next therapist arrives. I want him to look valuable, hopeful, worthy of the time and effort they are putting into his rehabilitation. He has indicated he wants that and I am his advocate. It’s a job.

I’ve asked him to think about what he would want if he were to have another stroke. Would he want to go through again what he’s experienced the last two months? He said he hadn’t thought about it. How can that be? He has so much time to think. So many things happen to us because we can’t imagine what we might have to decide, but now he knows and doesn’t have to imagine.

Last week there was an article in the local paper by Garrison Kieller of Prairie Home Companion fame. He also had recently been hospitalized and had experienced many feelings my husband recognized, a lot of mention of bodily functions. He had a good laugh when I read the article to him. Helplessness and dependency is not just happening to Dennis Dietz. And at some point, it could easily happen to any one of us.

I’m thinking about my future, although I know there’s no getting “control” over this realm. It seems to help me to do mental role playing around the possibilities, that way I’m not completely surprised by some of what actually happens. My choices play into my future so I try to make good ones (most of the time) but my best choice has been in believing that God is in control, and that he doesn’t plan on wasting any of my experiences. I can accept that hardship is part of life, and that circumstances can be beyond awful at times. Endurance is needed but there is help along the way in many forms. My belief is that the outcome is good, and it is sure. Just sayin’…

Apology to My Friend

So, Jesus, I know an apology is not the same as a gift, but it’s a start. I really have a hard time thinking of what to give someone who has pretty much everything, including my heart. It’s because I love you so much that I feel the need to apologize. You see, the other night when someone on the stage opened the mike to anyone who had something to say about you, about what you had done in their life, suddenly I couldn’t think of what to say.

I’m hardly ever at a loss for words, but it caught me off guard. As the seconds ticked off in a very awkward, silent way I got really stressed. It was looking like you hadn’t been doing anything, which is so not true. A person finally credited you with a healing, and another with your saving acts on the behalf of persecuted Christians but somehow that paralyzed me even further. What could I possibly mention to match that kind of dramatic “bigness”?

It’s true that there isn’t a great deal of drama in my life, but I’m pretty sure it’s because you’re protecting me. You are keeping your promises to me, especially that one about not giving me more than I can handle. But thank you that you also give me just enough adventure and excitement to make me feel alive and blessed. You know I need that! Thank you for knowing me so well.

This week has given me a lot of time to think about all the things you do for me, with me, and to me that are common but so significant. You don’t do them just on rare occasions but dozens of times every day. They are the “small” things that should not be discounted or despised. They are the bulk of your work in my life. I get so used to you being there, on the job for me, that I forget how to talk about it.

You haven’t seen fit to take away all my problems, but you’ve given me a view of them that cuts them down to size. Honestly, how can I even get upset about pandemics, politics, personalities, or ANYTHING when I know you are in charge? I don’t. Thank you for handling all those things so I can rest and be content. I know you’ve got me.

Next time I will be ready. It’s like the equivalent of an “elevator speech” isn’t it? I will be ready to say the important things about you, to give testimony like a good witness of your kindness, your love, your generosity, your great skill, your saving power, your graciousness in accepting apologies (like this one). Thank you so much. I love you.

Does My Heart Have Ears?

My heart has heard you say, “Come and talk with me.” And my heart responds, “Lord, I’m coming.” Psalm 27:8

I’m thinking about that question, “does my heart have ears?” I think it does.

I was walking one evening this week, feeling thankful for a chance to get out where it was quiet, feeling the rhythmic, somewhat stumbling way my feet were hitting the uneven ground, feeling like the open sky was listening. I was thinking (because it’s too hard not to think) about all the decisions of the day, all the possible responses to upcoming events, and processing, processing.

I felt like I heard in my spirit the suggestion that I talk about all those things – like, just speak them out. So I did that, and as I got into it more, it didn’t feel terribly weird. It felt like I was being listened to. It was easy to credit God with that – it had sounded like his voice, and no one else was around.

He Owed God a Baptism

There was a farmstead that I visited frequently when I was young. The farm was on Round Lake so the owners also had a resort, Meier’s Log Cabins. They had a daughter around my age and in summer, I was often at their home swimming in the lake, playing with their daughter, Barb, and often was invited to eat supper. In the winter we rode the same bus back and forth to school. Barb’s mom was a great cook, and had a large garden. They had a fish tank with guppies – funny the things that impress children… The father, Phil, was a skilled carpenter (as well as a farmer and resort owner!) He had built their house and it was full of features that were a bit special, like a real upstairs bathroom. I can’t tell you all the good memories associated with that family and that beautiful place.

But like many resorts on the lake, the cabins were sold off to private owners and so was the Meier farmhouse. I lost track of Barb when she went off to college a year before me. I think I might have seen or heard of her once since 1968. But I have often wondered about the house and what changes it might have undergone. I have wondered if I would ever see Barb again.

Oddly enough, I have another friend who now owns and lives in the Meier house. I see her at church quite often and our families have history, since our parents were friends and she and her husband know my brothers quite well. Just yesterday, my brother Bob suggested we go out to visit these friends. He had asked them if they would show me the house, for old time’s sake. We went.

There was a lot going on. They were preparing their RV for a two week trip west, and in addition they were preparing food for a special event. Jan and her sister were in the kitchen cutting up fruit and vegetables, food was everywhere. After giving me a tour of the house and sitting me down with some coffee, she explained that she and her sister were getting baptized, in the lake, the next day. She was excited and told me how it had come about.

Her sister had been wanting to be baptized and she knew Jan wanted to also. Could they do it together? That would be possible if they did it in Hayward before their upcoming trip. Although they didn’t need extra things to do before their trip, everything after that decision came together quickly. Jan had a minister friend who agreed to come, they invited their guests, and the ideas for “spiritual food” to serve after the baptism buzzed in her mind so adamantly that she KNEW how right it would all be. It had the feel of God’s blessing all over it.

Then she told a story about a phone conversation with her niece, Rachel. Rachel had been at a campground and had gone to an inspiring worship service with a Messianic Jewish rabbi. “Don’t be focusing on the bad, and the confusion in our world today” he had said. “We have reasons to celebrate!” He then told them about Rosh Hashana, the Feast of Trumpets, and about how everyone should have a shofar (ram’s horn that makes an awesome loud noise) to sound in the new year and days of celebration and hope. And the day chosen for their baptism was, of all things, the day that Rosh Hashana would start at sundown. How awesome was that?!

“Well,” she said to me, “I didn’t even know what a shofar was. Do you?”

“Yes, I have one at home. We actually observe the Feast of Trumpets for its Christian meaning and message.”

“No way!”

“Yes, would you like me to bring it to you?”

And that’s how it happened that we were invited to the baptism, along with 22 other friends and family. I packed up my shofar, got Mom in the car and we went out to the farmstead this afternoon. On the way we puzzled over how we might find my childhood friend Barb. Mom suggested Facebook but neither of us knew her married name, and checking out all the Barbs was not an option.

We arrived at Jan’s house and parked. Jan was in the driveway talking and came over right away. She had another story.

She and her sister had been walking out to the road to put up a “Baptism”sign up so people could find her place. They met a man on his way to the woods where he and his son had been cutting trees to use in their maple syrup business. The son had cut one more tree than planned and this man had decided to go out and get it. They lived in the Minneapolis area and were in Hayward for the weekend. They owned one of the cabins from the resort, and the woods nearby.

He saw Jan’s sign and asked what was going on. When he found out what they were planning, he said he had been wanting to be baptized too. They invited him to join them, not expecting that he really would.

But he did. He came with his married children, grandchildren, and his wife who, it turned out, was Barb Meier, my childhood buddy. I’m sure God had fun putting this little celebration together.

It was a beautiful time. Three precious people told what it meant to them to have come to this decision. The man, Don, said he had been baptized as an infant but as an adult, he had come to feel he “owed God a baptism”. They all demonstrated their love and commitment to their Savior and God and came up from the water smiling. And I got to blow the shofar, not an easy thing to do. Surprisingly, I did it quite well and counted it as just one more miracle in a long string of miraculous happenings.

Ceremonial words
Water baptism
A biblical feast – figs, honey, dried fish, olives, bread

This is just one of the ways that God demonstrates his reality to me. He does, crazy, awesome stuff and chooses to include me in his plans. He wants me to see him that way and be a part of what he does. In this I am not unique. I think he wants everyone to know him that way. Look for it, just sayin’…

Being “Right” Comes Full Circle.

(It has been suggested by the husband that I write this to his daughters.)

We were reading a thoughtful paragraph on humility this morning, referencing people who are always right about anything and everything. Dennis laughed and said something that our youngest daughter had said to him once. “I am right, because I am a Dietz!” It was said tongue in cheek and they laughed at it at the time too. Then he got quiet and continued, “I love our daughters so much. I hope they know that.”

It was a special moment and we continued talking about the meaning of that conversation and why the memory of it sparked such gratitude and love inside his “dad heart”.

During the years our daughters were growing up at home there were so many good times for us as parents and for them as children. There were also times, not so good, when they felt distanced from their parents. The role of provider was always of high concern for Dennis, and required a lot of his attention. Maybe small people (children), having limited experiences, were not as interesting as other friends and business associates. He never intentionally conveyed this to them, but it was conveyed nonetheless.

In addition it was natural to assume that children’s opinions, reasons, and thought processes were still to be directed and molded, not listened to and considered. This attitude also was never intentionally spoken, nor was it applied 100% of the time, but over the years it was felt, sometimes acutely. Although Dad provided well and loved them, he didn’t know them personally and was often clueless as to what they were feeling. Perhaps they heard more of “don’t leave toothpaste in the sink” and “your lights were left on – go turn them off” than the things daughters need to hear from their dads.

So what does it mean when a daughter can tease, laugh and point out some hurtful flaw when talking to her dad? What did it mean that she could remind him of that “always right” attitude in a gentle conversation (well, I don’t actually know how gentle it was or what it was about because I wasn’t there…)? To him, it meant forgiveness. It meant that she wasn’t afraid to remind him of that proclivity of his. It was acknowledgement and grace extended. And it was love.

The husband has mellowed so much in the last few years. Retirement has put the distraction of being a provider behind him. He fully realizes those things he has missed by not being more aware, more curious, more persistent about knowing his children. He has also been diagnosed with a heartbreaking condition. But it has turned into a blessing. It’s almost as if his heart had to be broken in order for him to know what was in it. It’s amazing to think about.

Although he is disabled, he has traveled long distances to see each of his two daughters get married, during pandemic times. He would not have missed these opportunities for the world. “Being right” has come full circle and is now much more like “Being in love.”

It provides hope for us all. We can grow, learn, change. The whole story doesn’t have to be pretty for the outcome to be good. God be praised for his transforming power, his gentleness and his wisdom, and his mysterious ways.

“Full of Feelings” Month: Mother’s Day

Well, it’s probably no surprise that there would be a lot of “feelings” floating around on Mother’s Day, another one of those days of expectations that are hard to realize. Harder even than birthdays, in my opinion. This year I didn’t even wait till the weekend to get emotionally riled up, so yeah, I’ve cried pretty much all day, mostly inside my head, but outwardly as well.

Earlier in the week I met several young mothers and got reminded of how exhausting and plain old “hard” it is to have young ones. Add in various degrees of dysfunction and things become heartbreaking, overwhelming, difficult to share with others who could possibly help. I also feel bad for family and friends who don’t have the children they want and generally feel left out of motherhood in one way or another. I accept these stories, and kind of embrace them because the women telling them feel like my people. They are my people. I pray for them and wait for the healing I know God wants to give.

And then there is the husband (mine). He has not been feeling as perky as before and is definitely not moving around well. He needs a lot of help from me to do basic activities of daily living – ADLs. When we have visitors as we do this Mother’s Day weekend, I become aware of the things that are hard for me to enjoy because I am coupled with him. It’s vastly different from being a nurse and having to help elderly patients. I had no trouble with that. The husband, who looks SO OLD, is my contemporary, my covenant partner. His life is largely my life for the foreseeable future. It is not a happy picture when I look at it from that angle.

And always on Mother’s Day, I miss my own kids. We can’t help that we live so far apart and can’t be together. Most days we manage not to think about that at all, but on Mother’s Day it’s a 24 hour reminder that people are missing from my life. This is also the first Mother’s Day that my sister-in-law is missing from our family. She died last August and there was an act of closure today, as we buried her ashes in a small memorial garden overlooking the pond behind the barn. That was a hard one, not because we have no hope, but because we believe in grieving well.

But, emotional exercise includes happiness and gratitude as well as sadness. How wonderful it is that I don’t have to miss having my own mother with me! I had time to talk with her and share all these feelings, knowing that she cares. I had phone calls and texts from my girls. And I had three of my brothers and a niece and nephew here as well to share the weekend and be family to me.

I am thinking deeply about all these events, all these people and trying (imperfectly) to lay the care on God, like he said I could. He wants me to know, to care, and to love – but then to hand it over and let him do any heavy lifting.

I have a regular job cleaning my brother’s business place on the weekends. I didn’t really want to do it today because … those expectations again. But as I emptied garbage and straightened things up, I got in the rhythm of work and started to forget sadness. Seriously, if you ever want to change the way you’re feeling, go find a mess and clean it up, focus on getting rid of some dirt, make a difference. What a gift work can be. God meant it that way and I am thankful for work, even on Mother’s Day. Or perhaps, especially on Mother’s Day.

A special rest spot on the hiking trail – my three brothers and my niece. What are they looking at?
They are looking out over the beautiful Namekagon River valley, one of the National Wild and Scenic River areas.

Hope for Things Thought Dead

What is the story here? I can see it plainly, but I never know how plain it is to others – we are all products of our past thoughts and experiences and it can make such a difference in our outlooks.

Last fall I put these amaryllis bulbs in the garage for their winter dormancy period. Their long leaves flopped over, turned yellow and dried up. They got no water, very little light, and no attention. One of them started pushing up a new leaf during the winter but there was no chance of it surviving and I worried about the untimely appearance. They were all dead looking, didn’t seem very stable or rooted in their pots, and were soft like they might be rotting. Nothing hopeful about them.

And then they came to life, like so many things do in the spring. Tips of the new leaves were barely visible in the dead layers of brown wrappings. I didn’t know if the early started would start again a second time, but it did. It was much later than the others and seems a bit tattered but it’s alive.

For me, it’s all about the hope that is built into creation that dead things come to life. It’s one of those plainly seen reminders of the intentions of our Creator. Seeing how life is embedded into the DNA of plants and trees and animals of all kinds, I can’t imagine that it isn’t also built into us. I do believe there is a creator God and that he’s telling me on a regular yearly schedule, that he is all about restoring, making new, and starting over, no matter how unlikely it might look to me. I love the sound of that and the spirit behind it.

Funny thing, once I started believing that God was sending me personal messages through things I could see and touch, things he created for my environment, he became real and personal to me. Don’t get me wrong, I believe in science. Science is a process by which we study our world. But science is not a creator. Science is still looking for a creator.

I’m enjoying this season. I’m watching for green grass to come up through the dead, matted fields. I’m watching for the geese to come to the marsh to make nests. I’m looking at the lilac twigs to see how far along the buds are. I’m watching the sunrise shift rapidly from south to north on the horizon. There is nothing dead that doesn’t have some hope attached to it and it all feels very personal, now that I’ve decided it is.

February Goodness: More Snow

February had this one last day to show up with something good and it decided that snow would be its choice. I walked over to Mom’s to say good morning and the walkways were bare and dry. I came home an hour later wading through several inches of very loosely packed, huge snowflakes. It was clear that shoveling and plowing would have to take place again. February is known for being indecisive about its weather.

There are many features in this field, none of which can be seen. White, white, white.

It was worse by the time we traveled to the church. The highways weren’t completely plowed. The confusing thing about new snow is the way it seems to erase important things like where the roads and ditches are. Everything is just white and more white and even the air is full of flying white. The husband’s remark, “maybe we should have stayed home today?”

But I was kind of glad that I would have at least another day of skiing, possibly a whole week. We ended up with about 8 inches which was just enough to fill in all the ski trails I had made the last time I went out. It was a different kind of snow too – so very wet that I could not get the skis to slide at all. The walk was much like traveling in very large snowshoes. I only went for a mile but the scenery was amazing and the experience of being out while the snow was coming down was worth it.

My feet are kind of like snowshoes, right?

I knew this month would most likely be a difficult month, unless I purposely looked for the goodness of God in it. Winter seems too long in February, especially a pandemic winter. A good friend’s death seemed imminent and, indeed, has come to pass. I seem stuck in some patterns I want to move out of. There are things I want to do that seem out of reach. February is a month of waiting for change. I know that if I wait long enough, change is certain, and for that I am glad. Change is part of God’s goodness.

March 1st, tomorrow, in the year 2021 has never happened before. It is brand new, like our snow today. There are good changes to plan for, dream about, pray about, and bring about. Looking forward to it, just sayin’…